Last week, our pediatrician speculated that Alyssa is having "seizure like episodes" (they don't want to label her until they do testing...) He was very serious about being diligent about watching her until he could get her into a pediatric neurologist. He went over instructions which involved calling 911 and other scary details.
Obviously, we heeded his words but didn't anticipate any need to apply them.
Friday night, we had a nasty "April Fool's" trick played on us. Around midnight, Alyssa's Angel Monitor alarm starting going off. An Angel monitor is a sensor used in the baby's crib or playpen which monitors their breathing and movement activity. For the sensor to go off, meant that she had stopped breathing for at least 17 seconds.
I didn't listen to the dr and call 911 because she was fine and breathing again (we think the alarm sounding startled her back into breathing) but I did take her to the ER just after midnight.
After 5 hours in the ER, they admitted us to Providence where we stayed until Sunday evening. Here are some pics of our princess on Saturday morning. She is hooked up to have her heartbeat, respiration's and blood oxygen levels monitored continuously. They noticed mostly when she was sleeping but sometimes when she was awake too that her respiration rate would drop into the teens and her blood ox levels would drop into the upper 70's and 80's.
Smiling for her Daddy!
Here is Sunday... she was happy with her Minnie Bobeet
Holding onto her wires... it was tough keeping her hands off of those. AND she had just figured out how to get her toes in her mouth so it was a tough time keeping the sensor wrapped on her toe out of her mouth, too!
So, we came home and on Tuesday, April 12th, she goes in for a 2 hour EEG with video with a pediatric neurologist in Temple. We'll go back on April 26th for the results. The pediatrician decided yesterday that she'll wear her monitor at home 24/7 for the next 2 months and strongly suggested that David and/or I take CPR and only leave her with someone who is CPR certified.
The fun and worrisome world of parenting!!!!!
Obviously, we heeded his words but didn't anticipate any need to apply them.
Friday night, we had a nasty "April Fool's" trick played on us. Around midnight, Alyssa's Angel Monitor alarm starting going off. An Angel monitor is a sensor used in the baby's crib or playpen which monitors their breathing and movement activity. For the sensor to go off, meant that she had stopped breathing for at least 17 seconds.
I didn't listen to the dr and call 911 because she was fine and breathing again (we think the alarm sounding startled her back into breathing) but I did take her to the ER just after midnight.
After 5 hours in the ER, they admitted us to Providence where we stayed until Sunday evening. Here are some pics of our princess on Saturday morning. She is hooked up to have her heartbeat, respiration's and blood oxygen levels monitored continuously. They noticed mostly when she was sleeping but sometimes when she was awake too that her respiration rate would drop into the teens and her blood ox levels would drop into the upper 70's and 80's.
My sad and tired looking baby :(
Perking up for her Daddy and Big Brother...
Smiling for her Daddy!
Here is Sunday... she was happy with her Minnie Bobeet
Holding onto her wires... it was tough keeping her hands off of those. AND she had just figured out how to get her toes in her mouth so it was a tough time keeping the sensor wrapped on her toe out of her mouth, too!
So, we came home and on Tuesday, April 12th, she goes in for a 2 hour EEG with video with a pediatric neurologist in Temple. We'll go back on April 26th for the results. The pediatrician decided yesterday that she'll wear her monitor at home 24/7 for the next 2 months and strongly suggested that David and/or I take CPR and only leave her with someone who is CPR certified.The fun and worrisome world of parenting!!!!!
Oh my goodness Tiffany! I bet that was a scary night. I hope you don't have another night like that again...keep me posted on how she's doing and we will keep her in our prayers. Love, Sheri
ReplyDeleteAw sad. Im sorry girl....i'll make sure to keep her in my prayers too! That's so much for such a little one and y'all to go through! :(
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